The WHO International Classification of Functioning, Disability and Health (ICF) Core sets on deafblindness is being developed by an international collaboration of global research partners consisting of Able Australia, Bruyère Research Institute, Canadian Helen Keller Centre, Canadian National Institute for the Blind, Centre de réadaptation Lethbridge-Layton Mackay du, Centre intégré universitaires de santé et de services sociaux du Centre-Ouest-de l’Île-de-Montréal, CNIB Deafblind Community Services ,CRESAM, Centre National de Ressources Handicaps Rares – Surdicécité, Deafblind International & Royal Dutch Kentalis, DeafBlind Ontario Services, European Deafblind Network, Institución Fátima, Buenos Aires, Institut Nazareth et Louis-Braille du Centre intégré de santé et de services sociaux de la Montérégie-Centre, Örebro University, Sense India and University of Montreal led by PIs: Walter Wittich & Sarah Granberg; Co-investigators: Mahadeo Sukhai, Atul Jaiswal; Saskia Damen; Collaborators: Serge Maynard, Genevieve Lizé, Sherry Grabowski, Sonja van de Molengraft, Frank Kat, Ricard Lopez, Renu Minhas, Jennifer Robins, Allan Wareham.

The terminologies and classification codes in such Core Sets will provide a standardized description of functioning for the wide range of combinations of hearing and sight loss, independent of the medical cause or level of personal autonomy of the person who is deafblind.

Financial contributions to this international project are provided by Canadian Hearing Services – Global Partnership for Research & Innovation, Centre de réadaptation Lethbridge-Layton-Mackay du, Centre intégré universitaire de santé et de services sociaux du Centre-Ouest-de-l’Île-de-Montréal, Deafblind International, DeafBlind Ontario Foundation, Institut Nazareth et Louis-Braille du, Centre intégré de santé et de services sociaux de la Montérégie-Centre and Quebec Vision Health Research Network.