Gracia Ng-A-Tham was born with severe hearing loss and diagnosed with Usher syndrome type 2 at the age of 16. She has progressive loss of sight and is now legally blind. She holds a master’s degree in Developmental Psychology and Pedagogy from Leiden University, The Netherlands. She has worked in several youth and family care organizations in The Netherlands. Since 2010 she is involved as an expert-by-experience in several projects like: advocacy for people with deafblindness, facilitating peer-to-peer contact and support for people with Usher syndrome and their families, and leading a project team for a series of interactive online events organized by the Usher Syndrome Foundation in The Netherlands. She advises professional care providers and researchers on deafblindness, among others as a member of the research project team ‘Coping with Usher’. She also assesses and advises a broad spectrum of cultural art organizations about improving their accessibility and cultural experience for people with visual and/or auditive impairment. She is married and has two children.