Full Name
Lilias Liston
Position/Title
Researcher
Organization/Company
Lived experience
Speaker Bio
Lilias Liston is British and lives in Scotland. I was originally a French teacher and later taught English to Speakers of Other Languages in France, Malaysia and the UK. I stopped teaching when I my three sons were born, the youngest of whom has congenital deafblindness. His name is Fearghas and he is now 25. When Fearghas was born, I knew nothing about deafblindness; in fact, I had never even heard the word. As Fearghas progressed through school, it became more and more evident that the support he was receiving was not appropriate for a person with deafblindness. And I too was at a loss as to how help my son. Then, in 2015, I was fortunate enough to go to the DbI World Conference in Romania where I discovered a world of knowledge, research, experience and expertise in Deafblindness. And, most importantly, I discovered there were others like my son. On returning to the UK, I was determined to learn more. I did an Intervenor course; I went to the Masters in Deafblindness 10th Anniversary Conference at Groningen University and then, eventually joined the master’s programme myself, graduating with an MSc in Communication and Deafblindness in 2020. My strongest motivation has always been to do my utmost to ensure that my son has a rich, fulfilling life, filled with laughter, love and friendships. Hence the subject I chose for my research project which I am honoured to share with you at this conference.
Lilias Liston